Why is information governance important in healthcare

Information Governance (IG) is about how to manage and share information or data appropriately. This includes information about patients collected digitally.

This includes understanding how to treat information about patients, and if and when you should share that information with others who are involved in that care.
It also relates to the use of data for other purposes such as research or evaluating the quality of care.

Why is understanding IG important?

In the UK the main legislation related to IG is the EU General Data Protection Regulation (GDPR) and the UK Data protection Act 2018. It is important that you understand the general principles for data protection in your work. Patients, their families and you (as employees) expect data about them (often known as personal information) or information that could mean that they could be identified (known as sensitive information) is managed and used appropriately.

The laws surrounding IG can be complex, and it can sometimes be difficult to identify if you should be sharing patient information with others (either individuals or organisations).

Basic Principles

Information should be:

  • used fairly, lawfully and transparently
  • used for specified, explicit purposes
  • used in a way that is adequate, relevant and limited to only what is necessary
  • accurate and where necessary kept up to date
  • kept for no longer than is necessary
  • handled in a way that ensures appropriate security, including protection against unlawful or unauthorised processing, loss, destruction or damage.

Where can I go for more information?

NHSX has an Information Governance portal which brings together national guidance on IG – to give you clear and consistent guidance on what to do in different situations, if you work in health and care organisations.

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Components and sub-components of the proposed model.

ComponentsSub-components
Rules and regulationsInformation and data confidentiality rules, data security rules, information and cyberspace, information management rules
PoliciesInformation and data confidentiality policy, data and information security policy, information and documents management policy
StandardsHealth IG management standard, information and data confidentiality standard, data, and information security standard, information, and documents management standard, data and information quality control standard
Information managementInformation design, creation, and gain, information analysis, information access and application, information dissemination, information storage, information disposal, information quality management, coding based on international coding books such as ICD (International Classification of Diseases)
Documents managementDocuments design, creation, access, and application of documents, documents dissemination, documents storage, documents disposal, documents quality management
Data GovernanceDefinition of data elements, determination of data structure and architecture, data modeling, improvement of clinical documentation, data quality control and management, big data management, metadata management, data dictionary management
Information technology (IT) ManagementAlignment of IT strategies with organization strategies, IT processes management and direction, development of an integrated approach to the selection, evaluation, and use of IT, application of technologies to manage and control information and documents, IT resources management such as information systems, hardware and software, network and database communications, financial and human resources, and data and information
IT GovernanceIT processes management and direction, development of an integrated approach to the selection, evaluation, and use of IT, application of technologies to manage and control information and documents, monitoring IT resources such as information systems, hardware and software, network and database communications, financial and human resources, and data and information
Risk ManagementIdentification of the events threatening data, information and cyberspace, prevention and control of unwanted events such as distortion, data and information theft, and violation of the security and privacy of data, information, and cyberspace, analysis and evaluation of threats and damages, risk management through setting and enforcing data and information access and protection policies, development and implementation of post-disaster data recovery programs
Change ManagementPlanning for development of new structures, processes, and technologies, implementation of changes or reforms, occupational development and enrichment, change control,evaluation and fixation
Compliance ManagementIdentification of internal and external laws, policies and standards, compliance with internal and external laws, regulations and standards, responding to legal requests, evaluations, and audits
Human Resource ManagementIdentification, selection, and recruitment of employees, job design and analysis and assignment of roles and responsibilities, staff training and justification, compensation management,performance evaluation
Program monitoring and auditingDefinition and formulation of necessary criteria, criteria-based evaluation at specified intervals, provision of feedback for decision-making and program improvement